NORD Board Member Testifies Before Energy & Commerce Health Subcommittee
Frank J. Sasinowski, representing the National Organization for Rare Disorders (NORD), was one of five individuals who testified on Tuesday before the U.S. House Energy and Commerce Health Subcommittee...
View ArticleNORD Outlines Steps to Promote Innovative Drug Discovery, Development and...
National Organization for Rare Disorders Submits Comments in Response to Congressional 21st Century Cures Initiative “Call to Action” The National Organization for Rare Disorders (NORD) has submitted...
View ArticleNORD Recommendations for Advancing Drug Discovery, Development, and Delivery
On behalf of the millions of Americans who have diseases with little or no treatment, the National Organization for Rare Disorders (NORD) has submitted a seven-step plan to the 21st Century Cures...
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21st Century Cures: NORD Issues Statement on Today’s 21st Century Cures Action
The following statement was issued today by Peter L. Saltonstall, President and CEO of NORD, following the release of the second discussion draft by the House Energy and Commerce Committee for its 21st...
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Reporting from Today’s 21st Century Cures Legislative Hearing
NORD staff attended today’s 21st Century Cures hearing, following yesterday’s release of the second discussion draft, and there were more than a few highlights for NORD and the rare disease community....
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Action Alert: Support OPEN Act (H.R. 971)
Today, NORD is joining the Everylife Foundation, Genetic Alliance, Global Genes, and the rare disease community in voicing our support for the OPEN Act (H.R.971), and requesting its inclusion within...
View ArticleNORD Issues Statement on Today’s Approval of the 21st Century Cures Initiative
Washington DC (May 21, 2015)—-NORD President and CEO Peter L. Saltonstall today issued the following statement on the approval by the House Energy and Commerce Committee of the 21st Century Cures...
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